Not to be a Downer but...

We have learned alot today about Emma's infection. She has a staph infection, the group b strep infection, pneumonia from the group b, and bacterial meningitis. We had a new picc line placed, a central iv line that will last a much longer time. They did a head ultrasound looking for any swelling from the meningitis. They consulted an infectious disease doc who spoke with us at legnth about our course of action. 21 days of antibiotics and a wait and see attitude. We will have an EEG done to check the brains electrical pathways for damage. Eventually we will have an MRI of the brain... when she is more stable. She is very sick still and has a long road ahead... we covet your prayers.

Please Continue to Pray...

So Emma officially has group B strep which is actually worse than the doctor was thinking it was gonna be but it is good that we know what it is, it's easier to treat. They decided to do a lumbar puncture today to see if it is in the spinal fluid which would not be so good and low and behold it is... We are looking at a 21 day course of antibiotics. She continues to be on the breathing machine, still to sick to breath on her own. They restarted her feedings. She still weighs 3lb 1oz. She has been more active and alert today which is very good!!! Please Please Please continue to pray for her! We have an even longer road ahead than we thought.

Some Setbacks...

So we have had a very rough last 2 days... sorry about not posting anything but it's been hectic. Emma had a tough day on Tuesday. She was having her episodes all day, pretty much constant. She would be OK for a few minutes at a time only. She normally has 4-5 a day, she was having 4-5 an hour... She was not being her normal self. I noticed a small area behind her right ear that was hard and red and raised and hot... all signs of inflammation. Showed the nurse and the Doc. They started the workup to see if she has an infection and it looks like she does. We ended up having to go back on the breathing machine. She is still so small and her body can only focus on one thing at a time... if it is fighting an infection she can't focus on breathing too!!! So the issue was not that she wasn't getting enough oxygen, it was that she was not trying to breath at all!

So the news today is that it is an infected and inflamed salivary gland, who knew that was an option!!! She remains on the breathing machine, she is not getting her food in her tube but in her iv, she will be on the antibiotics for 10 days. She continues to fight this infection and has not been her usual feisty self!! On a semi- positive note she is now 3lb 1oz but i think she may loose some weight with all this going on. Please pray the infection will go away and we can get off the breathing machine as soon as possible!

Beautiful Eyes!

Emma's sailing along doing amazing!!! She had her second eye exam today and again they found nothing of concern!!! Praise JESUS!!! They will continue to do these weekly probably until she is able to go home. She is at 2lb 14oz- come on 3lbs!!! Otherwise she is great!

Keep on keepin' on!!!

Emma continues to grow and is still gaining about an ounce a day, up to 2lb 13oz as of last night. She continues to have her "episodes", they gave her an extra dose of caffeine for this today and she was much better. She's just getting bigger!!!!

Like Grass...

Emma continues to grow like grass... seems slow but it's passing faster than you might think. 2lb11oz as of last night and continuing to show her little personality. She is doing great, thanks to all your prayers and Jesus healing touch!!!

Grow Baby Grow!!!

Everyday I see my beautiful baby girl she looks soo much bigger, every minute. It's like I close my eyes and she has grown more!!! She remains so small but soooo much bigger than our first days together, 2lb 10oz tonight!!! Feedings increased to 20cc/3hrs. She is doing amazing!!!